Providing cystic fibrosis patients with care and support

 
 
 
 
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ABOUT US

The CF Care Fund is a small charity that does big work. Partnering with doctors and social workers at select CF centers, we make health care more affordable for patients, regardless of their age or income. Our mission is to improve health and enhance quality of life by ensuring that individuals with CF have easy access to medical care, nutritional support, complementary therapies, and a physically active lifestyle. When needed, we also pay emergency expenses that, for many families, can be financially devastating.

 

Our Volunteers

The CF Care Fund is an all-volunteer organization. We donate our time so the CF Care Fund has minimal overhead costs. This means your contributions go directly to the patients we’re here to help.

 

Our Work

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Individuals with CF and their families face many challenges: maintaining health insurance coverage, learning about treatment options, safeguarding health, and coping with the ups and downs of living with a chronic, progressive medical condition. Yet these struggles are often compounded with issues of health care affordability. At the CF Care Fund, we believe it’s our job to work toward eliminating this last challenge. For patients at our partner centers, we help cover the cost of doctor and hospital visits, complementary therapies, nutritional support, and emergency expenses. We also subsidize a physically active lifestyle that contributes to good health. By supporting the unique emotional, social, and financial needs of families living with cystic fibrosis, we lift worry, improve health outcomes, and operate efficiently--often turning around support in less than a day.

 

CYSTIC FIBROSIS

CF is an inherited disease that affects approximately 30,000 children and adults in the US, and more than 70,000 people worldwide. More than ten million Americans unknowingly carry the gene for CF, although they’re symptom-free. CF is not contagious; a person must inherit two genes, one from each parent, to have the disease.

 
 

Just one story...

The CF Care Fund helped preserve the health of a girl with CF who lives with her mother, father and a teenage brother in southern New Jersey. After her father was laid off from his job, her mother became the family’s primary breadwinner, working as a receptionist. Dad worked odd jobs when he could find them to help make ends meet, and took full responsibility for the girl’s care. Over time, her health worsened, necessitating more frequent hospital stays and, during the same period, her father was diagnosed with end-stage liver disease. Mom became responsible for the care of both patients on top of being the family’s sole breadwinner, and with more medications to buy and less money coming in, she faced a shortfall. The CF Care Fund was delighted to step in, paying all out-of-pocket costs for CF medications, which amounted to hundreds of dollars each month so that the girl’s care was not interrupted.
 
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